Today has been such a great day. Ari has been really sick this past week. Everyday it seemed she would get something new. She was going diarrhea every 15 min, she wasn't eating, She developed really painful hemorrhoids, She had about three different infections, her ear started bleeding, They were having to monitor her hart really good because her potassium was out of whack, She got ulcers in her mouth, And was having 3 to 5 fevers a day. She did not smile or let me leave her side for about 6 to 7 days. Her bum was so sad. I felt so helpless. I believe most the time watching someone we love go through pain, we would so much rather take it upon us. About 2 night ago as we were falling asleep I just kept praying over and over again, "please help her to stop pooping and get some relief please". That night she cut back. That day she did a lot better and she smiled for the first time in a week. Today she has done amazing we have been playing and eating all morning. We are so happy and grateful.
Mom,Donna, and Jamie brought the kids up Thursday. They couldn't see Ari but for me that was exactly what i needed. We had a lot of fun. I miss them so much. They are such good kids.
Aunt Amber made her this head band. It is so cute. She is so talented. Ari is also holding her pink buddy, Witch she loves. she got the blanket in bingo here.
She has been living in the bath, for awhile it was the only thing that brought her relief. She loves taking baths with her buddies. we accidentally flushed her buddy down the toilet. she was not very happy with us. She only gets them with her food tray once a week, since she hasn't been eating we thought she wouldn't get another one. We told one of her nurses, Dave what happened and he brought her up 5 new ones. That was when she gave us her first smile.
The first bath she took lasted 5 hours. She even fell asleep and we couldn't get her out.
Here she is chugging her water in her night gown Aunt Dannie gave her.
Ari got a reaction called red mans to a medicine called vancomycin.
Having fun in the snow.
The Final Year
6 months ago
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