Sunday, March 7, 2010

Today has been such a great day. Ari has been really sick this past week. Everyday it seemed she would get something new. She was going diarrhea every 15 min, she wasn't eating, She developed really painful hemorrhoids, She had about three different infections, her ear started bleeding, They were having to monitor her hart really good because her potassium was out of whack, She got ulcers in her mouth, And was having 3 to 5 fevers a day. She did not smile or let me leave her side for about 6 to 7 days. Her bum was so sad. I felt so helpless. I believe most the time watching someone we love go through pain, we would so much rather take it upon us. About 2 night ago as we were falling asleep I just kept praying over and over again, "please help her to stop pooping and get some relief please". That night she cut back. That day she did a lot better and she smiled for the first time in a week. Today she has done amazing we have been playing and eating all morning. We are so happy and grateful.

Mom,Donna, and Jamie brought the kids up Thursday. They couldn't see Ari but for me that was exactly what i needed. We had a lot of fun. I miss them so much. They are such good kids.

Aunt Amber made her this head band. It is so cute. She is so talented. Ari is also holding her pink buddy, Witch she loves. she got the blanket in bingo here.



She has been living in the bath, for awhile it was the only thing that brought her relief. She loves taking baths with her buddies. we accidentally flushed her buddy down the toilet. she was not very happy with us. She only gets them with her food tray once a week, since she hasn't been eating we thought she wouldn't get another one. We told one of her nurses, Dave what happened and he brought her up 5 new ones. That was when she gave us her first smile.



The first bath she took lasted 5 hours. She even fell asleep and we couldn't get her out.



Here she is chugging her water in her night gown Aunt Dannie gave her.







Ari got a reaction called red mans to a medicine called vancomycin.



Having fun in the snow.

Thank you, Thank you

Life gets a little crazy in here. You never are bored or have much free time because Ari needs constant attention. Sometimes it takes me a couple hours just to get my dinner eaten.

Right now I am holding Ari; she is falling asleep. I'm eating a delicious salad Mom made me. I am reading Ari's blog and people's comments and crying like a baby. I am so grateful to Liz for starting this blog. She is such a good writer and always has me in tears. I love reading every one's comments. Hearing about Jennifer's little boy who has had a similar journey and is now doing great really lifts my spirits.

The post about donating blood really got me going. Literally, every kid on this floor is alive today because people donated blood. It touches me how many people have donated blood because of knowing Ari's story.

I really believe a lot of the Lanes have super human blood. My blood is lacking iron, super thin, and has all kinds of issues. Ari must have more of my genes then Travis's.

Anyway, thank you, thank you everyone for all your stories, comments, and prayers. We love you all.

IT'S MORNING

Yesterday was crazy. Ari has never lost her desire to drink. Water is her drug. Yesterday morning she ran out of her medicine that tells her body to hold on to her fluid and stop urinating. At the same time she was vomiting, peeing, and SHE WOULD NOT DRINK. Even when she is vomiting a lot she will keep up her fluids by drinking like crazy. So she got dehydrated super quickly and started blacking out. We got medicine in her and she pulled out of it pretty quickly. It is very scary when this happens. The rest of the day went pretty well. Mornings are always the worst.

The doctor working with us said she grew up in a poor country where the number one cause of death in children is dehydration. Mainly, because they do not have the resources to treat it