Another fever

Tonight Ari got another fever. She has had one every night for 5 days in a row. Everyday they tell us she can go home if she doesn't have a fever for longer then 24 hours, we are starting to think that day might never come. we actually are starting
to really like it here. we are becoming pretty good buddies with our nurses. This is by far the best hospital ever.

The way we got here this time is. After Kaley's birthday we just stayed in Mt Pleasant until her Monday appointment. We got to her appointment at 11 and everything went pretty smooth. She got chemo and a transfusion. We left at about 5:40 At about 6:00 she had a hard time breathing. Her breathing was like someone getting ready to have a baby. She also got a fever. She would grab a hold of me with her little fist and scream out in pain. If you know her you know that she never cries or screams even when she is a ton of pain. We gave her some oxycodin and it didn't even touch it. We called Primaries and they told us that even though we were only 30 miles away to just go to the nearest emergency room. We ended up at Alta hospital. They checked her vitals, witch weren't good, but were pretty much at a loss on what to do about this black hole of a baby. so They suggested we put her in an ambulance and send her up to Primaries. They said that it would take about 15 min to get their ambulance ready, witch to me was crazy. Or they said we could try taking her. So that is what we did. Thankfully Jeremy came got our other kids. We went about 90 miles an hour and made it about 15 min. When we got their they did about 20 different tests and x-rays and of course everything came back negative. They gave her morphine for her pain witch helped a Little. At one point her hart rate was 204.

So now we are back. she is such a mystery.

This is a text that Travis sent out to the family the next morning:

Family, I have to admit as of yesterday I am feeling the challenge of Ari’s condition. I thought I was a super hero, numb to the situation. But the endless physical torture that she endures everyday has pierced my heart to a point of almost bitterness towards faith and the atonement. But I know better than to go there. I do know that what is happening is in Gods control, I just don’t agree with it. I would rather that she moves on into the next estate as to have to continue enduring such excruciating pain. Pain that a grown man would fear, a pain you would only wish upon an evil enemy.

I wonder what this financial challenge and Ari’s challenge is for what purpose? I often ponder searching for an answer but find myself confused and question the power of God. But then I step back and realize that these experiences are for my own good and I realize that I have learned so much from them, my relationship with my wife and kids have grown, my gratitude for life and health have increased, my love for family and appreciation for those relationships have deeply awaken a better understanding of God’s plan. I then realize that these experiences are a great blessing from God and I feel privileged for the opportunity that he has allowed me to take part of them. I anxiously gather everything I feel like I have learned and with a joyful and grateful attitude I try to go back out there and make the best of the situation. Knowing, with no doubt that God knows and understands and I find comfort that God is in charge orchestrating such a divine occasion. I then feel embarrassed for doubting the power of God and the atonement. I then realize my role is simple. It’s the basics, have charity, have faith, have a good attitude, continue to learn, continue to be grateful, and most important endure the trial and never give up hope.

Dad I really want to thank you for all you’re doing to help with such a business disaster right now. Your handling matters that make me cringe, I am so grateful for you and you may not know how much you’re helping me right now thank you.

(Mom) thank you for the many endless nights of support and the miles that we physically put in together in the beginning of Ari’s journey and thank you for supporting Dad with the business challenges we have right now.

(Dona) thank you so much for taking care of our kids and getting them in school. I wish we would have left them in, but I guess…..What do they say about hindsight?

(Liz) thank you for the blog it has allowed a lot of people to remain updated. You not only have kept them updated but with your gift of writing you’ve allowed it to be inspirational and entertaining.

(Vicki) thank you for your example of positivity and endurance. You’ve always demonstrated those two attributes our whole lives. You’ve always been an example to me of being positive and never giving up.

(Bobbi) thank you for your support even showing up at the hospital and no one was there. LOL. Thank you for taking the kids, coming and getting them from Alta emergency room and for caring for them like their own mother.

(Jaymi) thank you for the many endless nights at the hospital. For all the many trips you have made to haul kids.

(Taylor) thank you for being you. I don’t know if you know but Ari’s in the hospital. LOL (“when the freak did we get ice-cream?”) thank you Taylor for letting me tease and make fun of you!

(Brian) thank you for your silent support when I speak with you I feel such a love and concern not only for Ari but for me and Haley as well.

(Jake) thank you for many endless nights at the hospital of so much support and sleeping on couches and always physically being here for support.

(Amber) thank you for so many dinners you have brought. Your food is so good. Your support to Haley has been very helpful. You’ve always just shown up out of the blue just waiting to see if there is anything you can help with.

(Kim) thank you for dressing up Kaylor and sending us pictures of her. She is beautiful.

(Lorri) thank you so much for all you have done there is no doubt that if there is anyone that Haley and I can rely on to receive any kind of help from it is you. You are so non judgemental and your endlessly supportive of anything we do, willing to endure with a humble and grateful attitude. I am also grateful for the strength that Haley gets from you.

(Haley) I don’t have words to express my gratitude for you. Your example of faith and humility are not human. You never give up, you’re always grateful. I am so impressed by the way you’re in tuned to what Arianna needs medically and emotionally. The way you took charge the other day when Arianna was vomiting and having convulsions. You gave orders to the doctors and it was your mother’s intuition that saved Arianna. I find it very important to give gratitude to people and God. I feel like when I recognize my blessings and give thanks for them for some reason burdens are alleviated

I think he is amazing. He is defenetly a super hero to me. We really do have so much support. Today Ammon and Hayley drove all the way up to see us. They brought me some much needed stuff and saved me a trip. they also brought Ari some really cute Dora stuff. On the movie they bought her. the princess name is arianna. I don't even think they knew that when they got it. They also brought some stuff for her to color. she has been into crafts lately. she loves painting. Another thing she loves is this song called 10 snowmen learn to read, it is on a web site called starfall. I love this web sight. We finally taught her how to push the button to play the song so we don;t have to do it every 10 seconds, hours on end. she holds her fingers up and waves them back and forth and laughs, it is so cute.

Josh and Joni Jones have also brought in Delicious meals to us. We enjoy seeing and visiting them. They are great friends.

The Kids are enjoying being at aunt Bobbi's. She has made it quite fun for them. I seriously don't know what we would do without all their aunts and uncles. thanks so much to everyone.